Other CF Sites
In the autism community, there is a grass-roots movement of using alternative biomedical remedies. The medical community seems mostly clueless and the best information mostly comes from folks who have "been there, done that" themselves with their child(ren). Similarly, I was pleasantly surprised to find that many parents on the various CF lists seem more savvy than what I generally hear from doctors. So here are a few "been there, done that"s from the CF community.
- CF Nutrition 4 Life
- This is a portal to a dual website, one with breastfeeding stories for moms of CF patients and one with a focus on nutrition for CF families. The personal story of the webmaster of this site can be found at Jody's Story. Since I am an ardent believer in a "Food, not drugs" approach to healing, I am glad to see a website focused on nutrition for people with CF instead of on a medical approach.
-
Parenting Children with Health Issues
-
Essential tools, tips and tactics for being a great parent when every moment matters.
-
Happy Heart Families
-
Building Healthy Families and Happy Hearts
-
Carl Lash
-
"Welcome to our CaringBridge site. It has been created to keep friends and family
updated about our loved one."
-
Phoebe's Updates
-
"Welcome to our little Phoebe's
Web Page. Phoebe was born with Downs Syndrome and Cystic Fibrosis. This is a
chronicle of her ups and downs. Come join the
ride!"
-
Updates on Mabel
-
"This could be called a day in the life....but it isnt its an ongoing battle about life with Cystic Fibrosis; and an expectation of miracles~"
-
Karlie's Page
-
-
Azer's Cystic Fibrosis Webpage
-
"A child living with CF.
Info about CF.
A parent's blog about CF"
-
RebeccaElias.org.
-
Welcome
Thank-you for visiting RebeccaElias.org. This is my new website that will contain all previous information from CF Life and the website I was working on - Glycos and CF.
-
Savannah
-
We have started it to keep you updated on how Savannah is doing. Savannah has Cystic Fibrosis, Mild Cerebral Palsy and Secondary Carnitine Deficiency. She is a very friendly girl, but due to her illness she isn't allowed to go out much...
-
Khadoj
-
A personal CF site in Arabic. I think the title translates to "Khadoj and Cystic Fibrosis". I translated part of it once using a free translator.
If you have a website about your personal experiences with CF (whether you have CF or your child or someone else has it) or a website which in some way grows out of such experiences, please e-mail me the link so I can consider including it.
|
|
Withdrawal
Tips and Tricks
Atypical Cystic Fibrosis
Mental Models
Food, Not Drugs Updated!
PH Balance Updated!
Lifestyle Changes
Fighting Infections
Other Conditions
|
|
